Do you know what Fragile X is? Many people don't, that's why we are helping SparkleSister Roxanne (read her story here) and FRAXA raise awareness and money. Fragile X syndrome is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics.
Before Massachusetts based FRAXA was founded in 1993 by parents who discovered their newborn sons had Fragile X syndrome, the US government was only spending $30,000 per year to find a cure. Since its inception, FRAXA has funded more than $25 million in biomedical research, yielding discoveries that are changing the lives of families coping with Fragile X. According to its website, FRAXA is one of the most efficient and effective charities in the world, with management and general expenses under four percent and research and expenditures at 86 percent.
Have this awareness embellishment applied to a solid color SparkleTech skirt of your choice (sold separately) and $5 from every purchase will be donated back to FRAXA!